Home Links to Other Resources
Links
Links to Other Resources PDF Print E-mail
Written by Administrator   
Tuesday, 03 November 2009 08:25

Links to Other Resources

DialysisEthics banner

 

Angie is a Canadian dealing with kidney disease who also runs a website.  She has a transplant now, but has spent sometime on dialysis.  We've known Angie for some years and she is one of the most helpful, friendly, knowledgeable people we know!  I sometimes think there is more than one of her, she can be found on many of the sites helping out and giving advice.
Angie's_Kidney_Korner

 

Front Range Kidney Patient's Association is a support group based in Denver.  If a person is in the Denver area and has a chance to drop by, I would highly recommend it.  Often times they will feature knowledgeable speakers acquainted with many aspects of End Stage Renal Disease.  They also provide support for those not only dealing with the technical aspects of kidney disease, but also the emotional problems.  I found many experienced and knowledgable people who make newcomers feel welcome.

Front Range Kidney Patient Association


Home Dialysis Central is not only the place to go to learn more about home dialysis, but also is a great place to get many technical questions answered.  Dori Schatell, a nurse, and Beth Witten, a social worker, have always been courteous and helpful.
Home_Dialysis_Central


I Hate Dialysis.com was started by a patient who went by the internet name Epoman.  Unfortunately, he has passed on - God Rest His Soul.  However others have carried on the tradition he started with a little tongue-in-cheek humor mixed with discussions about End Stage Renal Disease.  A popular site definitely worth the visit.
I_Hate_Dialysis



Lori Hartwell has dealt with kidney disease since the age of two and founded the organization Renal Support Network to instill "instill health, happiness, and hope into the lives of fellow patients".  Lori has traveled the world inspiring and educating patients, and health care professionals with talks and has written the book "Chronically Happy - Joyful Living in Spite of Chronic Illness".  Below is a link to her organization's forum.
Kidney_Space


Bill Peckman is another one who can be found all across the internet helping out, we have known him for years.  He not only knows the ins and outs of what is going on with End Stage Renal Disease, but also is savy on such issues as reimbursement - the last we heard he was involved in such issues as Medicare Bundling, paying a lump sum for treatment.  Follow his blog at "Sharp End of the Needle".
Dialysis_from_the_Sharp_End_of_the_Needle



Last Updated on Sunday, 27 June 2010 17:50