Links to Other Resources

Angie is a Canadian dealing with kidney disease who also runs a website. She has a transplant now, but has spent sometime on dialysis. We've known Angie for some years and she is one of the most helpful, friendly, knowledgeable people we know! I sometimes think there is more than one of her, she can be found on many of the sites helping out and giving advice. Angie's_Kidney_Korner
Front Range Kidney Patient's Association is a support group based in Denver. If a person is in the Denver area and has a chance to drop by, I would highly recommend it. Often times they will feature knowledgeable speakers acquainted with many aspects of End Stage Renal Disease. They also provide support for those not only dealing with the technical aspects of kidney disease, but also the emotional problems. I found many experienced and knowledgable people who make newcomers feel welcome.
Front Range Kidney Patient Association
Hemodoc, From Doctor to Patient is a blog by Dr. Peter Laird. Dr. Laird is an internal medicine specialist with nearly 20 years of clinical practice in hospital medicine, office practice and acute care medicine. Since 2007, Dr. Laird has required renal replacement therapy with hemodialysis due to underlying IgA nephropathy, a progressive renal disease. Dr. Laird now dialyzes at home with the assistance of his wife Marilou and is an outspoken advocate for wider access to optimal dialysis strategies.
Hemodoc, From Doctor to Patient
Home Dialysis Central is not only the place to go to learn more about home dialysis, but also is a great place to get many technical questions answered. Dori Schatell, a nurse, and Beth Witten, a social worker, have always been courteous and helpful. Home_Dialysis_Central
I Hate Dialysis.com was started by a patient who went by the internet name Epoman. Unfortunately, he has passed on - God Rest His Soul. However others have carried on the tradition he started with a little tongue-in-cheek humor mixed with discussions about End Stage Renal Disease. A popular site definitely worth the visit. I_Hate_Dialysis
Lori Hartwell has dealt with kidney disease since the age of two and founded the organization Renal Support Network to instill "instill health, happiness, and hope into the lives of fellow patients". Lori has traveled the world inspiring and educating patients, and health care professionals with talks and has written the book "Chronically Happy - Joyful Living in Spite of Chronic Illness". Below is a link to her organization's forum. Kidney_Space
Want to know what can go wrong at your clinic? Or if you are in California, want to know what HAS gone wrong at your clinic? Either way, Roberta Mikles RN and QualitySafePatientCare have put together the site for you. Roberta has been a long-time, passionate advocate for those receiving dialysis and someone we've enjoyed working with back in 2007 - this during our push for Colorado's certification of hemodialysis technicians (a successful venture). An informed and educated person is a safer person. Roberta and QualitySafePatientCare's California state surveys can help you with that education and provide you empowerment to make more informed choices and decisions regarding your care and treatment.
QualitySafePatientCare
Bill Peckman is another one who can be found all across the internet helping out, we have known him for years. He not only knows the ins and outs of what is going on with End Stage Renal Disease, but also is savy on such issues as reimbursement - the last we heard he was involved in such issues as Medicare Bundling, paying a lump sum for treatment. Follow his blog at "Sharp End of the Needle". Dialysis_from_the_Sharp_End_of_the_Needle
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