General Discussion > Introductions

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getlife:
Hi everyone,

Just a small intro here.

35 going on 36 years with Chronic Kidney Disease. Diagnosed at age 11. Started hemodialysis at age 15.
Presently on in-center nocturnal hemodialysis. 3 nights a week, 8 hours each.

Two previous transplants, first one, living donor, rejected right away, removed after 6 weeks.
Second one, disease donor lasting 18 years.  Failed in 1999. Been on nocturnal since.

Back on transplant list a year in October.

Diana
S

cschwab:
Hi Getlife,

Nice of you to drop by and welcome!  Sounds like you have quite a bit of experience with all this and we look forward to hearing from you!

I'm glad to hear you are on slow nocturnal, I've heard a lot of good things about it.  If my daughter hadn't gotten the transplant I like to think we somehow could have gotten her on slow nocturnal.  One of the founders of this organization was a very big proponent of the treatment - Dr. Kenneth Bays.

Also good to see it's possible to do the treatment in-center.  Is it one of the big dialysis companies sponsoring this, or a smaller outfit?

Chris

angieskidney:
Hey Diana! I just realized you signed up! Nice to see you! :) Glad Nocturnal has been working for you! :) I never had the chance to do that as it is not available here but I would have liked to have had the chance.

Heard you got the call today and then they told you they had the wrong blood type? How did that happen?

getlife:
@cschwab
I dialyze at a LDO.  Fresenius Medical Care.  Davita also offers in-center Nocturnal Hemodialysis. 

@Angie, I am sorry, I was just browsing when I saw I had some unanswered questions.  Well, I don't have to answer your question.  You know the whole story by now.

cschwab:
I'm well acquainted with Fresenius, they have the clinics around here.  Good to hear DaVita and Fresenius have made some progress when it comes to slow nocturnal!  I think you are the first person I've run into that is doing that sort of treatment in a clinic.  Do you have much trouble sleeping through it?  I'll bet your labs are a whole lot better than most!

I was also wondering if you know if Fresenius is able to cover their costs with in-clinic slow nocturnal?

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