DialysisEthics2_Forum
Other => Historical Posts => Topic started by: admin on September 18, 2009, 09:44:00 PM
-
Marty
Joined: 28 Oct 2002
Posts: 160
Posted: Sun Mar 23, 2003 11:36 am Post subject: Spreading the word
--------------------------------------------------------------------------------
Our nephrologist receives the same payment as he did when we were in center. I don't think it's just a money issue, I think it also applies to ambition. It takes a effort to get something going. As far as patients just wanting to come in and hold out their arm; I think your right. If I felt as fatigued as most of the patients do, I would just give up too and let someone else do it. But what I think we are missing is the number of families that have willing partners. In my little trip I learned that these families members were willing to do the job and the husbands were all for it. I think as the patients (husbands) start to feel more energetic they will become involved. <
><
>It's not just the patients that can't contribute to paying taxes and working. In the 2 cases I talked with and including myself we were forced to leave our incomes just to provide transportation. So how can the government poss<
>ibly think they wouldn't gain if at least 1 member of the family could stay employed keeping families off the medicaid rolls.<
><
>The word doesn't need to get out IT IS OUT. Also in the waiting room was a paper from the NKF and<
>most of the articles in it were about MORE DIALYSIS daily and nocturnal.<
><
>Personally, I don't expect to be able to judge if a center should or should not open up a program. I do not have privy to the financial situation. However, when staff and nephrologist know where programs are and don't point interested patients to them......that is unjustified. Only a selfish person would withhold this type of information as you have got to be worrying more about your own<
>"A--" or you would be talking.<
><
>Guess there aren't to may of us left in the good ole USA that believe in doing the right thing just because it is the right thing to do. From the lowlyest tech to the high company CEO's it's all about keeping the paycheck.<
><
>
*****************************************************************************
Marty
Joined: 28 Oct 2002
Posts: 160
Posted: Sun Mar 23, 2003 12:02 pm Post subject: Grain of Salt
--------------------------------------------------------------------------------
Maybe what I said should be taken with a grain of salt. I am feeling deeply angry and depressed today knowing we have patients and FAMILIES out there wanting to GET THEIR LIVES back, willing to do what it takes, and they are just being ignored. Guess I better stay out of dialysis waiting rooms for a while, because I just loose it.
*****************************************************************************
ridgerunner
Joined: 11 Jan 2003
Posts: 101
Posted: Sun Mar 23, 2003 12:56 pm Post subject: home dialysis
--------------------------------------------------------------------------------
i have been on home dialysis for six years noctornal for five years. you would think that i would be able to set back and live my life and stop the fighting but it is not true. the problem is caused by the govt and is making it more hard to set up and run a progam. until the govt becomes pro home dialysis it will get no where. one of the major if not the major problems are the large number of control freaks dialysis attracts. if you study history in the south you will find out the slavery issue was a total economical failure. the main reason it existed was the total control the master had over the slave. if you read double bind and dialysis in the usa you will find the issue is not total economic. until we face the fact that dialysis as practiced in the us has sinster side we will get no where.
*****************************************************************************
Sick of it
Joined: 11 Feb 2003
Posts: 46
Posted: Mon Mar 24, 2003 7:23 am Post subject: home dialysis or noctornal
--------------------------------------------------------------------------------
Please go back to the main board and post the names, contact numbers and areas for your home hemo or slow noctornal dialysis locations and Doctors who support it.!<
><
>We can help each other more than anyone else.<
><
>We have the way the truth and the Light!<
><
>Thank you!<
>
*****************************************************************************
jfwag
Joined: 11 Jan 2003
Posts: 140
Posted: Mon Mar 24, 2003 10:15 am Post subject: Home hemo
--------------------------------------------------------------------------------
To Marty, you are not losing it. I am sorry but I just don't have the time to go through every post on this thread at the moment. So I haven't followed everything in detail. Maybe later. Marty I know how you feel. I didn't have the exact same experience but like I said in my first post on this thread. We were looked at crosseyed by other families. When we had the time during training we educated them about home hemo. I think Bill made a good point in that it is nephrologists who should "advertise" home/nocturnal. ( I had to paraphrase)<
>Marty like you said it is not a question of money with the nephs. I forget now, (it has been a year since Lois' passing and I will be posting her story soon on this board) but medicare had two ways of billing. Don't remeber the details. Home dialysis opens up another spot too make money in center, is the way I saw it. Tell me I am wrong, please. Also, again like you said Marty, AMBITION plays a big part. Too "sickof it" I don't have phone numbers in front of me and I can get them. We were trained and did home hemo at Taunton Dialysis Center (FMC) in Taunton Massachusetts. I do have direct contact with the nurse that trained us and she is now head of support for FMC home nurses.
*****************************************************************************
Curious
Joined: 02 Feb 2003
Posts: 39
Posted: Tue Mar 25, 2003 5:50 am Post subject: Home Hemo
--------------------------------------------------------------------------------
Jwag can you get a FMC list and locations? It appears they are more apt to go there.<
>What is needed as far as changes in your house?<
>
*****************************************************************************
jfwag
Joined: 11 Jan 2003
Posts: 140
Posted: Tue Mar 25, 2003 8:24 am Post subject: I can...
--------------------------------------------------------------------------------
...try and make a call. A quick one on the house changes though. Everyone will be different. We really didn't make any major changes. We had recently had a fire so the house had updated electric 100 amps (I have heard some want 150) Two sep[erate lines though one for the machine and one for the RO system. We had plenty of storage space, and that is needed. We had done PD previously and that took up 3X's the space. I have heard it is the other way around though. We hooked up to a shower head (with an adapter, no big deal) and drained into the toilet. You also obviously need an area for the machine and a place to do the TX. In our case it was done in bed which downstairs at this time because of some amputations to Lois' legs. We had plenty of room. Some people might want to put down tile, we didn't but had hard wood floors and they worked fine. Yoour water will have to tested several times (besides the every TX water testing) We happened to have a septic tank and it work out well for us. The will notified by the center so they warn you when they might do say "line flushing" or some such thing they might be doing to the town water system. I think different units might require different things depending on the situation. I think Lin has said she has well water and has to something completely different. If I can't get a hold of some one look around FMC's web sites. They have a few the last time I looked and there should be some one listed for units that offer this.
*****************************************************************************
tex gal
Joined: 01 Apr 2003
Posts: 2
Posted: Tue Apr 01, 2003 3:45 pm Post subject: questions?
--------------------------------------------------------------------------------
i live in the east tx. area and only learned of slow noct. treatments on this web
site. i wish i had known of it earlier for my mom, unfortunately it is too late for her. we have a friend that recently withdrew from dialyis because she said if that's what it took to live she didn't want to. she is sick of the facility and the "care" she gets there. so, three weeks ago-she quit. i talked to a local home health equipment supplier about the slow-noc. dialysis and they had never heard of it. how can we get information before it is too late for anyone else that doesn't even know there are other options? please don't tell me to contact our local facility-they are part of the problem and we don't know where else to look. thanks for all your help and i am glad your (marty) dad is doing good- that makes it all worth while.
*****************************************************************************
Marty
Joined: 28 Oct 2002
Posts: 160
Posted: Wed Apr 02, 2003 3:29 am Post subject: Info. on slow nocturnal
--------------------------------------------------------------------------------
Just type slow nocturnal dialysis in a search on the web and you will find SEVERAL articles on slow nocturnal dialysis. Pluggers new post on bill HR 1004 also gives a good analysis of more dialysis and points out medicare reimbursement needs to change in order for this to be offered in more than a hand<
>full of places.