DialysisEthics2_Forum
General Discussion => Introductions => Topic started by: getlife on January 10, 2010, 07:26:58 PM
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Hi everyone,
Just a small intro here.
35 going on 36 years with Chronic Kidney Disease. Diagnosed at age 11. Started hemodialysis at age 15.
Presently on in-center nocturnal hemodialysis. 3 nights a week, 8 hours each.
Two previous transplants, first one, living donor, rejected right away, removed after 6 weeks.
Second one, disease donor lasting 18 years. Failed in 1999. Been on nocturnal since.
Back on transplant list a year in October.
Diana
S
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Hi Getlife,
Nice of you to drop by and welcome! Sounds like you have quite a bit of experience with all this and we look forward to hearing from you!
I'm glad to hear you are on slow nocturnal, I've heard a lot of good things about it. If my daughter hadn't gotten the transplant I like to think we somehow could have gotten her on slow nocturnal. One of the founders of this organization was a very big proponent of the treatment - Dr. Kenneth Bays.
Also good to see it's possible to do the treatment in-center. Is it one of the big dialysis companies sponsoring this, or a smaller outfit?
Chris
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Hey Diana! I just realized you signed up! Nice to see you! :) Glad Nocturnal has been working for you! :) I never had the chance to do that as it is not available here but I would have liked to have had the chance.
Heard you got the call today and then they told you they had the wrong blood type? How did that happen?
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@cschwab
I dialyze at a LDO. Fresenius Medical Care. Davita also offers in-center Nocturnal Hemodialysis.
@Angie, I am sorry, I was just browsing when I saw I had some unanswered questions. Well, I don't have to answer your question. You know the whole story by now.
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I'm well acquainted with Fresenius, they have the clinics around here. Good to hear DaVita and Fresenius have made some progress when it comes to slow nocturnal! I think you are the first person I've run into that is doing that sort of treatment in a clinic. Do you have much trouble sleeping through it? I'll bet your labs are a whole lot better than most!
I was also wondering if you know if Fresenius is able to cover their costs with in-clinic slow nocturnal?
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Sleep..I take a sleeping pill around 11 PM and it kicks in within 20 minutes. Others who also dialyze there, come and go to sleep right away. I am just not one of them. The 8 hours definitely beats any 4 hour treatments. My labs are very good. The spKt/v runs around 3.18-4.2. My diet is less restricted. No complications with any cramping...etc. It is well worth it.
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Get to cut back on meds too? Sorry for all the questions, just you are the first person I've run into that does the in-clinic slow nocturnal - at least the first one who has made the mistake of mentioning it to me. :)
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@Angie, I am sorry, I was just browsing when I saw I had some unanswered questions. Well, I don't have to answer your question. You know the whole story by now.
Ya I do now since you answered on KidneyKorner (http://kidneykorner.com/smfbb/) instead. :computer:
Sleep..I take a sleeping pill around 11 PM and it kicks in within 20 minutes. Others who also dialyze there, come and go to sleep right away. I am just not one of them. The 8 hours definitely beats any 4 hour treatments. My labs are very good. The spKt/v runs around 3.18-4.2. My diet is less restricted. No complications with any cramping...etc. It is well worth it.
I always had trouble sleeping on dialysis so I don't know how you do it. :confused: