Author Topic: Alport's Syndrome  (Read 3732 times)

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Alport's Syndrome
« on: September 16, 2009, 08:41:28 PM »
Dialysisedu



Joined: 06 May 2003
Posts: 2

 Posted: Tue May 06, 2003 3:31 am    Post subject: Alport's Syndrome  

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I have Alport's Syndrome and there is limited information about it anywhere. Does anyone know anymore about it other that it familial, x dominant, usually only has "associated problems:" hypertension, hearing loss, visual loss, heamturia, proteinuria. Very few end up in ERSD, particularly women. The main etiology is widening of the basement mem
ane. Any other information would be great! Thanks!! <
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Dialysisedu



Joined: 06 May 2003
Posts: 2

 Posted: Tue May 06, 2003 3:32 am    Post subject: Re: Alport's Syndrome  

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Dear aprnjam,<
> I put this over in the general discussion as more people will see it here and you may get some info.  
 
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Joined: 06 May 2003
Posts: 1

 Posted: Tue May 06, 2003 6:39 am    Post subject: at  

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dialysis_support. A number of people there have it and know a lot about it.  
 
"Like me, you could.....be unfortunate enough to stumble upon a silent war. The trouble is that once you see it, you can't unsee it. And once you've seen it, keeping quiet, saying nothing,becomes as political an act as speaking out. Either way, you're accountable."

Arundhati Roy