my angel got her wings
Joined: 07 Jul 2003
Posts: 12
Posted: Mon Jul 07, 2003 7:05 am Post subject: the senseless death and needless death of my daughter
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hi every one my name is estella hodgson aka (tina)...my daughter passed away last yr due to what i believe to be because of hemo dialysis and the carelessness of both the clinic doctors and the techs there. her story is very long but needless to say, she was never diagnosed as being terminal yet she is gone..i have been online for over a yr now trying to prove the neglegence of the clinic and not what was put on her death certificate... holly started hemo ddialysis on july 24th 2001, and at that very time is when she started the journey to her death,,,,prior to this she had too many bouts of peritinitis so this one y she was put on the hemo. right after she started hemo is when the problems started she could not take being o the cycler at all it gave her headaches it caused her to loose close too if not 50 with in the first one to two months after starting it as well as many blood transfusion and multiple problems with being in and out of the hospital more than ever before......i believe she had dds (dialysis disequali
ium disorder) and the doctors and nurses did care to hear from her about it..nor did they listen to me. so eventually this all lead to her bieng hospitalized on the 20th of march 2002 and me as her power of attorney was never notified that she did not do her dialysis sentions. which when she finally did do one on the 23rd it ended up causen her to have 3 petti maul siezures the third one being the one to cause the cns to shut down and she stopped
eathing ... she was put on a ventalator and at that time a neurosurgeon tapped me on my shoulder and told me to shut off the f**kin machine because she was dead and i was makin her suffer more by keepin her on it...she was not gone she was still movin her arms and feet as a matter of fact she lifted tham off the bed and reached for the tube in her mouth,,and did it in front of the doctor and when she went to tell the neuro surgeon he made her feel as if it was a site from a wish and not that holly was trying to come back to us..this is the link to her web page that i am doin in her memory...please feel free to look at it her obituary is in there as well and i will be adding some of the medical records for arlene to look at too,<
>members.tripod.com/tweety32702nj/id4.htm
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jfwag
Joined: 11 Jan 2003
Posts: 140
Posted: Mon Jul 07, 2003 8:13 am Post subject: I know...
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...where you are coming from. Lois' story, (or part of it is posted under patient stories) Your stroy here makes me very emotional and I will need to read and disect it again when I have some more time. I am appalled at the nuerosurgeons lack of apathy and just mindless thinking. My first question though was, (and you might not want to answer this) but who was Neph. working for. FMC, Gam
o, private etc...Also Lois went through one hell of a moajor peritonitis ordeal that sent her back onto hemo. But let me digress for the moment and get back...I know where you are coming from...
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Lin
Joined: 28 Oct 2002
Posts: 337
Posted: Mon Jul 07, 2003 9:20 am Post subject: I' so sorry
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for the loss of your precious daughter! I went to her site and in reading discovered she had a rare illness that affects blood vessels. I also read how her health had deterioated prior to her death, and that she ultimately suffered seizures. It must've been terribly difficult for yo uand your family. I'm a mom too, and know how I feel about my boys. My thoughts and prayers are with you! Lin. ( 48, pkd, dialysis 2 yrs.)
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My sympathy
Joined: 07 Jul 2003
Posts: 1
Posted: Mon Jul 07, 2003 3:23 pm Post subject: reviewed your daughters memorial
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Tina, Just wanted you to know that I could hear the pain and loss in your voice when we talked today.<
>Try those numbers that were given to you. You will be put into contact with those who have walked down the very same road as you.It is a form of support for you.<
>You are no longer alone and we welcome you to this organization that you can help with the journey that we all have embarked on.One that will give all patients rights and the industry to have accountability.<
>Know that we are here for you and you have my number if you need an ear.<
>Arlene<
>
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my angel got her wings
Joined: 07 Jul 2003
Posts: 12
Posted: Tue Jul 08, 2003 2:19 am Post subject: holly's neuro surgeon
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believe it or not the man who miss diagnosed my daughter was the same doctor who worked on pres reagon during the attempted assasination,,,dr cevantaese or how ever it is spelled.....i am goin to pull her medical records today and add them to the site...he is also the one who on her 18th birthday walked in to her room and said hi young lady i hear its ur birthday today, happy birthday u have a tumor just like that, no sympathy at all in his voice. i had her transferred to university of pennsylvania hospital only to find out it was not a tumor but it waws in fact capillary telangeictasia. which when i told dr. kevin judy that she passed away he was shocked because he said it was not terminal.<
><
>hollys story is a long complicated story because she was not one to show normal signs at all...she never did anything by the book and it was very hard to diagnos her.
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Lin
Joined: 28 Oct 2002
Posts: 337
Posted: Tue Jul 08, 2003 11:42 pm Post subject: The Mold
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All too often in the medical community, and in dialysis, they try to fit us into a mold. As you know in your daughter's case if we don't fit we are ignored, mis diagnosed and mistreated. No two of us are exactly alike, even if we have the same illness or situation.<
>After reading about your daughter I'm left wondering why and how so called medical professionals let her fall through the cracks! I know however all too well that if you have something out of the ordinary, that isn't easily remedied, the docs. don't want to help; they don't want to think outside of the box. I have a son who is ailing and that has been my experience; they only want to deal with the quick and easy, and others fall by the wayside. Even the specialists don't seem to want anything mildy hard to dx. or tx.. Lin.
